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- Doctors gave baby Roona Begum just months to live when she was born
- Her head was filled with ten litres of excess fluid and she could barely move
- She suffers from a rare condition called hydrocephalus – water on the brain
- But thanks to series of operations her parents are hoping for ‘bright future’
Daily Mail
August 31, 2013
When she was born doctors gave Roona Begum just months to live.
Her head – triple the size of that of an average baby – was filled with ten litres of excess fluid inside her brain, and was so heavy she could barely move.
But now Roona’s parents are heralding the miracle transformation by their baby into a ‘happy, playful little girl’ after a crowd funding website, set up by two complete strangers, paid for a series of operations.
Fifteen-month-old Roona suffers from a rare condition called hydrocephalus – known as water on the brain.
Soon after she was born in a remote village in northeastern India, her head began to swell, and she was diagnosed with a severe form of the condition.
It grew to 94 centimetres – three times the size of an average baby – and the skin was pulled so tight across her face she could barely close her eyes.
Her parents were soon unable to carry her anywhere and even found it difficult to lift up their little girl and comfort her,CNNreports.
But now Abdul and Fatima Begum describe ‘beautiful, happy baby’.
Her head, still significantly larger than it should be, has decreased to such an extent that she is able to move it, and open her eyes.
Although it is still painful for the little girl to lift her head up, she is described as ‘playful’ by her young parents and has become the ‘centre of attention’ of her village.
Unable to pay for their child’s treatment, pictures were circulated by various news organisations, and a charity came forward to offer help.
Norwegian students, Jonas Borchgrevink and Nathalie Krantz, started an online campaign that raised $52,000 to help fund any further care needed.
